Tag Archives: gratitude

All these good things

Being disabled by chronic illness means you might spend a fair amount of time being annoyed, frustrated, angry, or depressed by stuff. I’m not saying we’re all a load of bitter, miserable people; I’m saying that when you’re limited by your body in ways you can’t control no matter how firm a resolve you may have, almost every day you’re going to run into some kind of situation that requires special navigation. You end up focusing on your health almost as much as a hypochondriac, not because you want to, but because it’s your illness that runs your life in many ways now, not you. And every day you have to figure out what you can and can’t do all over again.

We all navigate these waters in our own way, and I don’t presume to tell anyone what kind of emotional response they ought to be having. But along with all my own kvetching and occasional pity parties, I also find time as frequently as I can to remember what I’m grateful for. (Some weeks more frequently than others, I admit.) It feels good to remember this stuff, and so Thanksgiving being Thursday, I thought I’d list a few of the things I am most thankful for, because I’m too bogged down with NaNoWriMo to come up with something original.

heart-1I’m thankful NaNoWriMo is almost over.

I’m thankful that I’m not as bad off as I could be. And no matter how bad off I might get, I will always be thankful for this.

I’m thankful that, with the help of medication, I can still manage a night out at the theatre, or a house party, or a celebratory dinner for two. I may end up paying for it afterwards, but I’m glad I haven’t lost that capacity entirely.

I’m thankful for having smart, open-minded doctors who aren’t afraid to say “I don’t know” nor to tell me hard truths when necessary.

I’m thankful I’m able to pay to see those doctors, as well as have all my basic needs well taken care of, not to mention a number of frivolous ones.

I’m thankful for the persistence of scientific curiosity, and the beauty of the world as science shows it to us.

I’m thankful that my oldest friends accept and support how I’ve changed since becoming ill, and that my newer friends are so understanding about my limits.

I’m thankful for the skeptical community that has opened my eyes to fascinating areas of study. The amount of learning and interaction I get from this has really kept me engaged and active this year after I’ve had to curtail my academic career.

I’m thankful for the two insane felines who live here and make me laugh every day.

I’m thankful to have a husband who is a true life partner in every sense of the term.

I’m thankful for you, whoever you are reading this, for being here. Working on Newly Nerfed keeps me reading, writing, and connected, and every reader does me an honor.

Have a safe and delicious holiday!

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Two years ago…

I never wanted to get married. Not to say I had anything against the institution, I just didn’t see myself as a wife. This was a pretty good situation when I met this guy almost seven years ago. I hadn’t grown up anxious to fulfill my role as a bride nor casting around for a groom. So I didn’t harbor any doubts, when Paul proposed to me in front of Space Mountain, about my mad desire to say “yes,” or that he was my one.

I try not to Zenbaw on this blog too much (/wave at forumites), but it’s true that the past five years have been the most difficult period of my life. Many awesome things did happen, but meanwhile the speed and energy with which I was used to going through life slowed, eventually down to a trickle, due to circumstances over which I had absolutely no control. This isn’t, unfortunately, that uncommon of a story, and in these stories relationships frequently unravel as well.

Paul, however, has stood by me through all of this, as boyfriend, fiancé, and husband. And through all this I understand how incredibly lucky I am that with everything I’ve lost, I’ve kept the most important thing in my life, and he is by my side every day. Tomorrow it will be two years since we got married and if I believed in a god, I would be thanking him for giving me such a wonderful friend to be my husband.

So instead I will thank my husband for giving himself to me. I love you, Paul.

paul

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Weekend sendoff

Thanks to everyone who is visiting, whether you’re posting or not. I’ve gotten nice messages about the blog from people who then apologize for not writing comments on it. Don’t worry about it, all right? Don’t be concerned at all about your zero points in my blog DKP system. Yes, the commenters will get the best loot first; that’s just what happens when you choose not to be a hardcore rai–uh, reader.

Seriously, I’m glad you’re here and if you let me know you’re enjoying it, publicly or privately, that’s just icing on the meringue. Or on the merengue, which can get messy and I don’t recommend it.

Two cool things to report. I received a kind Skepchick namecheck from Amanda about Monday’s post, and I hope I can entice any new readers from that link to stick around. I’ll be writing more about chronic illness, skepticism, and pseudoscience for sure. Thanks to Desiree‘s interest in my pitch, I’ll also be talking about that post on the Skeptically Speaking podcast’s “Speaking Up” segment (super sibilant!), which will tape October 30 and be available for me to listen to all red-faced with a pillow over my head a few days later. Some of you are laughing about me agreeing to be on a podcast. I know who you are. Stop it.

Who fudged with my gosh-darn EQ settings?

Where's the EQ on this thing?

I took up cross-stitch this week to accompany my growing addiction for podcasts. I did a little in high school but I have more time and patience to do cooler stuff now. When I suggested to Paul that I could hang out while he watches one of his terrible horror movies and just work on my stitching, he said it was like we’re an old couple now, sitting in front of the TV, me with my knitting and him with his paper. Meanwhile, the image I get as I’m stitching away while laughing my ass off at SModcast is an updated version of the woman sitting next to the wireless with her sewing. It’s old-fashioned and high-tech at the same time, and I’m really enjoying it. I may even learn to knit, which if I did believe in heaven I know my Grandma would be laughing her ass off at that. (As a kid, my level of fail in that arena was relatively spectacular despite her excellent efforts to teach me.)

Have a safe and delicious Labor Day weekend. I’ll post on Tuesday with my review of three paid iPhone apps that I recommend for anyone, but that I think have certain value for CFSers and the like. I may keep doing a post on Fridaya where I can get a little more informal all up in here. (Should I not say “all up in here?” All right.) I send you off with a NSFW — naughty language — blooper reel from My Man Godfrey.

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