Tag Archives: deafness

Game a while in another man’s chair

When I was a kid, I was very curious about disabilities. I don’t know why; I didn’t have any friends or family members who were disabled, or at least not in the ways I could recognize. Yet in elementary school I avidly read biographies of Helen Keller, her teacher Annie Sullivan, and Louis Braille. By the time I was nine I had taught myself the sign language and Braille alphabets, and directed a video about Keller, in which I played the lead role (and left my glasses on in several scenes).

I never actually wished to be disabled, but I wanted to know what it was like for the people I’d read about. And reading wasn’t enough. I spent some days at my house blindfolded, navigating by touch and tripping over the cats. I spent a day at school not allowing myself to say a word. And I tried to “deafen” myself with earplugs and other improvised methods, only to be frustrated that I could still hear sounds.

Now I’ve had years of experience in college disability offices, been a sign language interpreter and teacher for deaf students, and know many people in “real life” and/or online with a range of disabilities. (I put that in quotes because who can tell the difference anymore?) And of course, I’m somewhat newly nerfed.

Speaking of the nerf bat, I’m writing a game review for AbleGamers, a website and foundation dedicated to improving accessibility in videogames, which I’ve recently joined as a staff writer. This means a new and challenging way to look at both games and disability. The questions I have to ask of a game force me not just to imagine what it might be like to be color blind, for example, but to really examine the functional implications of that. Is there any game information that is solely presented in colors without any other explanation? What about captions — are they available for both in-game and cutscenes, and what size and font are they, and how long do they stay on the screen? What if you only have the use of one hand? Are there gameplay or difficulty options for people with cognitive impairments?

It’s not just a checklist or a matter of scrutinizing the game’s options. When I’m considering all these questions and others, I play the game imagining, to the extent that I can, that I really need those captions, or can’t distinguish between green and red, or can’t use both mouse and keyboard. It’s like those experiments I used to do as a kid, testing an imagined lack of function against a world that’s mostly built to make use of that function. And something happened after I did my first game session analyzing its friendliness to color blind players: I found myself noticing some billboards or websites with problematic color schemes.

It’s good to look at the world this way from time to time. As more than one wise person has said to me, we’re all disabled in one way or another, or were, or will be, even if only temporarily. Maybe the next time you’re playing a game, turn down the volume all the way and see how it changes your experience. It doesn’t come close to the experience of being a deaf person, of course, any more than my day in a wheelchair at Blizzcon comes close to the experience of using a chair every day of one’s life.

But as I found out when I was young, even a short or small visceral experience can deepen your empathy, or help you consider the world for a moment in a new way. And besides, odds are relatively good that if you read this blog, you’re going to be playing a videogame soon anyway. (Anyone want to take a little survey on that? Leave a note in the comments or contact me.) And you can check on AbleGamers via Twitter or Facebook — one exciting development is an impending segment on CNN. And if I may end this post with a little fundraising, they will send you this limited edition poster by Justin Russo, the guy who did that other awesome videogame art, for a donation of $55 or more. It’s got a message that no gamer could disagree with.

This post contains only my own opinions and does not necessarily reflect those of AbleGamers. Full disclosure: I have been requested to plug this poster. Fuller disclosure: I didn’t actually know this before I wrote the post. Also: Many deaf people do not consider themselves to be disabled. In this post I’m using a very broad definition of “disability,” which does include deafness, for simplicity’s sake. And thanks to Patrick and Desiree for their kind assistance.

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You’re an interpreter? Do you know Braille?

I’ve been thinking about skepticism and ethics. That train of thought led me back to the code of ethics I followed as a professional sign language interpreter, which led me to reminisce. While I do have plans to write about the first thing, I thought I’d just share a few of those recollections.

The theme of this post is “stupid things people say to interpreters.” Although occasionally things like these are said maliciously, usually they come from well meaning people who are ignorant of – or nervous about – deaf people. It’s of tantamount importance to stay friendly, helpful, and polite. Hearing clients often relate to a hearing interpreter more than to the deaf client, which is why they ask some of these questions, but they can also connect our behavior with that of the client. So if an interpreter is rude or unhelpful, a hearing client may associate that with the deaf client or even all deaf people. (Seriously.)

Thus, a lot of my time as an interpreter included fielding these stupid things people said to me without offending them, much as skeptics often have to educate people, such as loved ones, without alienating them. In both cases you have to do some culture-bridging. Here’s a few examples, and while I may have changed a few identifying details, I swear this is all true. In addition, some of them are extremely common among all interpreters.

Interpreting for Todd Parr in 2005

Question: “Do you know Braille?”
Mental response: Do you know anything?
Actual response: “Braille is used by blind people.” If further confusion results: “Deaf people don’t need a special way to read unless they’re also blind.”

When I was a student, an experienced interpreter once told me she got asked this all the time. I thought she had to be putting me on. Then I started working as an interpreter. Hoo boy.

Question: How much can he hear?/Is he doing his homework?/Can he lip-read?/Does he understand?/etc.
Mental response: What am I, his mother?
Actual response: “I don’t know, but if you want to ask him, I’d be happy to interpret that.”

I take care to say this pleasantly, with politeness and sincerity, and it almost always gets the point across. The one time it went south, I was taken out of a class after saying it to the jackhole of a teacher who asked me something along those lines, and didn’t like the answer. As working in his class entailed having to interpret while he described how lovely his turds were, it wasn’t much of a loss.

Comment: (After a mistake or a joke) “I don’t want you to interpret that.”
Mental response: Then don’t fucking say it!
Actual response: Interpret “I don’t want you to interpret that” to the deaf client. After that, it really depends on the situation.

Question: (waves hands around randomly) What did I just say?
Mental response: Amazing. You hit on the exact sign for “I’m a moron.”
Actual response: Depending on my relationship with people, I’ve gotten away with “You said ‘I don’t know any sign language.’” If I don’t know them well enough to make a pointed joke, I usually let a smile and a shrug answer for me.

Question: Why does he look at you and not me when I talk to him?
Mental response: Were you born this way or was it traumatic brain injury?
Actual response, from the deaf client: “BECAUSE I’M DEAF!”

This came from the worst hearing client I have ever worked for. In this case I was lucky: I only witnessed the comment while my partner was the one interpreting. Lucky because I needed all my mental power to focus on not busting out laughing, which I probably wouldn’t have avoided had I been obliged to interpret all that.

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Guest post: National Disability Mentoring Day

by Christopher Taylor Edwards

Did you know that the third Wednesday in October is National Disability Mentoring Day (DMD)? And has been for ten years? Neither did I! But it is! And who am I? I am a late-deafened adult and friend of the bloggess who normally graces this site.

I live in New York City and so spent my DMD with the Mayor’s Office of People with Disabilities (MOPD). MOPD organized several hundred disabled adults to shadow mid-career professionals at work throughout the five boroughs. Those who were chosen to participate were matched up with mentors within both government and the private sector.

1bloomI think because my personal career background is in publishing, I was asked to participate in DMD at Bloomberg LP. Which was really beyond anything that I expected. It has an excellent reputation both for journalistic and data quality but also for its work culture and its phenomenally impressive offices. Can we stop here for a second and talk about them? Imagine you’d entered the workplace equivalent of a boutique hotel in Miami mixed with a data newsfeed: glass, white marble, translucent pink and orange and purple signs with moving walls of data. The attention to detail was phenomenal. It helped to solidify my thinking that good companies are good throughout their organization — nothing slips by them. Even the food we were served was fantastic.

Anyway, I’m getting ahead to the micro details and forgetting the bigger picture. Sorry about that. Let me backtrack and talk about getting into the program.

I moved to NYC in August to reunite with my partner who moved here the year before. I sort of dicked around in Washington, D.C. for a year while trying to figure out what to do with my life, and then decided that I needed to seek out the services of New York State’s vocational rehabilitation. VR is used by the disabled (I cringe at that word, but there are none better) for help in the workforce. New York State connects VR to education support services for the disabled into a program called VESID (Vocational and Educational Services for Individuals with Disabilities), run through the Department of Education. So at the encouragement of the state, I moved here in August after hooking up with the awesome people at Manhattan VESID. Through my career action plan there, it was recommended that I apply for DMD through MOPD. I assumed this was something done only here in New York, before learning that DMD is a national program.

I interviewed for the program at MOPD’s office near the Brooklyn Bridge and then waited. I was a little worried, actually. The interview went just okay. I think the biggest problem I had was being assigned an American Sign Language interpreter. My ASL isn’t there yet. And while I appreciated the interpreter doing a form of English-based signing, I found it to be a distraction. I am not used to working with interpreters and should have just focused on the speaker. Unfortunately, MOPD doesn’t offer real-time captioning (CART).

2bloomAnd yet despite my nervousness, a month later I was contacted by MOPD and learned that my mentoring day would be at Bloomberg LP in the marketing-creative department. I quickly RSVPed for an orientation session. (I was excited!) And then the following week, feeling under-dressed, I arrived at Bloomberg to meet the other mentees and my mentor. We were welcomed with a light breakfast and a short introduction about the day from their HR department, and then introduced to our mentors and whisked away to our respective departments.

While in marketing, I spoke with people in various jobs within the group — a print designer, a motion graphics person, my mentor who was a photographer and ad designer, and the marketing department lead. I got to talk about my own experience in relation to the jobs that the others were doing. I also got to ask about workflow, as I’ve specifically not been job hunting at large organizations because of my concerns over interoffice communication. Workflow is difficult for large companies to change and adjust to, and a person with different communication needs is too often the odd person out.

In some ways, I wasn’t prepared for how much it was like an interview. I thought it would be more one-on-one, matched with people in similar situations. Perhaps in some ways that’s a drawback. I think what disabled workers need to see is other disabled workers and how they are functioning in a work environment. I know what it’s like to work with hearies. and generally know what the challenges are there. What I don’t know is how other deafies navigate a hearing-focused work environment.

In the end though, it was a great opportunity to present myself to the team at Bloomberg LP and see the inside of a marketing department at a large media company. Whether it will lead to anything longer term — either as a point of contact within the media community or a position at Bloomberg — it’s too early to say. The biggest advantage I’ve seen so far is having made the contact and gotten impressive feedback within the MOPD and Bloomberg LP loop. I’m now on the MOPD list of disabled, mid-career professionals who make a good impression. And MOPD is seemingly a good advocacy organization with great ties to the NYC business community, so for that reason alone I rate the DMD a success.

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