Category Archives: Life

Weekend sendoff: When am I?

Thanks for sticking around despite my not posting in over a month. I’m not just dropping in to reassure you once again that I have no current plans to stop blogging, either. Newly Nerfed needs a little work, cosmetically as well as under the hood, and I’ll be making those changes as well as perhaps blogging more.

(There may or may not be a very hectic time in my near-ish future, so I don’t want to make any promises. And I’ll tell you about it once I can. No, I am not pregnant in any way.)

As I started to update the blog, I began wondering whether I could really still call myself newly nerfed. My health problems cropped up in 2003, and I finally had to stop working in 2008. And now it’s almost three years of reading, keeping up with research, and writing. Aren’t I now just…nerfed? I’ll be writing about that next week.

This month has flown by in a muddled memory of stress and uncertainty, excitement and good times. Life brought many distractions, including other writing projects and obligations…which are another reason I can’t promise consistent posts here. And that’s not bad at all; it’s just that having to prioritize my energy, I let a lot of it got sucked up into April without too much left for personal blogging. May may be similar.

If you haven’t already read it, I send you off with my guest post for SaveYourself.ca, a Canadian blog about managing pain. It’s about maintaining a romantic relationship when struggling with chronic pain and illness. (It’s not as depressing as it sounds.)

If you have already read it, well then, here’s a clip from The Sarah Jane Adventures. After Lis Sladen‘s death this month, it takes on a new level of meaning. (Which is more depressing than it sounds.) Goodbye, our Sarah Jane.

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Remembering the Triangle fire

Just after the turn of last century, a terrible tragedy took place in New York’s Greenwich Village. A garment factory caught fire, and it was catastrophic. A mixture of mishap and avarice led to the deaths of 146 people, the great majority of whom were immigrant women and children. The youngest was 14 years old.

The 9th floor, where more than half of the workers died

This was the Triangle Fire, which happened 100 years ago today on March 24, 1911. At that time, garment district workers — mostly women — were working to improve conditions and support unionization. While the International Ladies’ Garment Workers’ Union (ILGWU) had been formed only eleven years earlier by male workers, there were now many women involved, for the most part young Jewish and Italian immigrants.

Two years before the fire, there was a small strike at the Triangle Shirtwaist Factory, and while it had no effect except to get its organizers fired, it was a galvanizing event for Local 25 of the ILGWU. Two months later, Clara Lemlich, a Russian Jewish woman who had arrived in the U.S. eight years earlier, led a three-month general strike in the garment district eventually involving thousands and thousands of workers. While it resulted in higher wages for many of those workers, Triangle’s owners Max Blanck and Isaac Harris kept their shop determinedly non-union.

Max Blanck and Isaac Harris

Conditions at Triangle, like those at other shops, were as demoralizing and exhausting as you can imagine from Dickens’s bleak images of industrial-age factories. The pace was brutal, with no water or bathroom breaks allowed. When mistakes were inevitably made, the workers had to pay for the wasted cloth, thread, and needles. At the end of the day, women were made to open their handbags to prove they hadn’t stolen anything. Blanck and Harris often made it a habit to lock all the other exit doors so nobody could slip out the back.

This was, of course, a large and terrible factor in the number of deaths when the fire started on March 24. While some were able to escape, the floors stuffed with cloth and paper quickly blazed out of control and many were not so lucky. A fire hose on the floor failed. The fire escape turned out to be useless. The workers on the 9th floor were never notified about the fire. When the fire department arrived, it was discovered that their ladders were too short to be of any use in rescuing the trapped workers, many of whom chose to jump to their deaths, tearing through the meager protection of police nets, rather than burn. Witnesses spoke of seeing women at the windows holding hands or hugging before they plunged. (This photo of a policeman staring upwards helplessly while surrounded by the bodies of jumpers is graphic and may be disturbing.)

The Triangle fire, taking place in the middle of the garment district’s contentious efforts to unionize, tragically illustrated some of the very reasons why workers demanded protections. It brought home the struggle to all of New York City; more than 200,000 people from every level of society turned out for the funeral procession that wound around lower Manhattan, honoring the unidentified dead. (Last month, those last six names were finally able to be announced.)

The funeral procession

The Triangle fire led to changes in labor codes and fire standards all over the country and brought awareness of workers’ conditions to the public. One of the witnesses, Frances Perkins, would become the first female Cabinet member, and as Secretary of Labor, her experiences influenced Franklin Roosevelt’s New Deal. It was a seminal event in the history of the organized labor movement

I’ve been fascinated by what happened at Triangle ever since I lived in New York, half a block away from where the fire took place. The building is still there; I’ve walked past it a hundred times. And it so happens that Blanck and Harris were indicted for manslaughter on my birthday, April 11. (They were acquitted, unfortunately, and settled privately with a score of families whose relatives had died in the fire. Blanck was impressively sleazy; just a couple of years after the fire he was back chaining the doors of his new factory during working hours, and cited for yet more safety violations.)

The Triangle fire helped change the public’s perception of labor unions from pure socialism to something that was necessary to protect workers. The comfort I take away from this ghastly tale is that those 146 people, 123 of them women, didn’t die for nothing. Their deaths have great meaning, especially when only a month ago, thousands of workers protested at Wisconsin’s state capitol for the very protections that the Triangle fire helped bring about.

The Triangle Shirtwaist Factory fire took place during a time of struggle and protest for workers’ rights. 100 years later, that struggle continues on. Let’s remember those who perished, and honor the sacrifice that improved the lives of millions.

Resources:

Triangle, by David Von Drehle
Triangle: Remembering the Fire, HBO documentary
American Experience: Triangle Fire, PBS documentary
The Triangle Factory Fire, Cornell ILR website

(All photos in this post are from from Cornell’s excellent website. My apologies for the links opening in the same window; there is a bug of some kind.)

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Weekend sendoff: Oh, you again?

Yes, it’s me again. 2011 has not, so far, left me with much blogging energy. There have been major transitions, some still in progress. I am optimistic that things will improve, since I also have a few other projects I’m eager to get back to.

Anyway, I wanted to share two articles about CFS and XMRV that sum up the situation very well. Both touch on the relationship between patients and researchers. The first is from the Chicago Tribune, with a good summary of the state of XMRV research. The die-hards dislike this writer, but I think she’s seeing the big picture and the article reflects that: there are a lot of CFS patients who believe in XMRV, but the research is not yielding more evidence in favor of it.

The chasm between the WPI and its supporters and many in the scientific community is emblematic of a new, modern-day dynamic in which patients keep close tabs on the work of researchers and feel empowered to challenge that work and form strong opinions about the quality of it.

An editorial in Nature goes into more depth on this aspect, and exhorts both sides of the argument to listen to and respect each other. (The first comment, by Brian Foley, mentions different etiologies, something I harp on a lot.)

The challenge for scientists in this field, as in any other that involves patients, is to understand and be motivated by the plight of the patient community without letting their research be swayed by it.

Good reporting on this “mess” is great to see in mainstream media like the Tribune and The Wall Street Journal. However, I’m wondering whether CFS patients, who have tried for decades to shed the images of laziness, mental illness, and hypochondria, aren’t developing a new stereotype for themselves: mouthy and unswayed by science. Obviously, this describes only a portion of the patient community, but as I’ve fretted before, I believe the rest of us may be thought of as guilty by association.

I don’t really try to convince people of which side they should be on anymore. I only ask for clarity of thought and acceptance of solid evidence. If XMRV is proven to be implicated in chronic fatigue syndrome, I will accept that scientific consensus just as I’ll accept the other one that may be forming.

I recognize that there are political and scientific considerations that do cast a reasonable doubt on all the XMRV criticism, and which I don’t follow as closely as many do. I might not be informed enough about those aspects. I also have encountered very little medical resistance and have a doctor who is actually interested to find out exactly what’s wrong with me. Many of the WPI followers have been legitimately burned by their experiences with medical science, and I think they come by their suspicions honestly.

So I follow the science, and hope that the pro-XMRV crowd at least take it into account, which too many do not. Suspicion is okay; conspiracy theory is going too far. Just as people demand understanding and respect from their doctors, so should they reciprocate.

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